Ramping up Elder Care – December — The 21st Century Matriarch

My parent came home from the hospital the Wednesday before Thanksgiving...still requiring a lot of care at night which fell to me since I was staying in their house. Both me and my sister remained almost as sleep deprived as when we were alternating 24-hour stints at the hospital! We quickly realized that the strategy that had worked for the caring of our 90+ year old parents over the past few years was not going to work going forward…and the ‘new normal’ we had scrambled to established could not be sustained.

Even sleep deprived – I acknowledged there were magical moments and the joy of not being in the hospital anymore. I appreciated little things like the gentle glow of warm-colored night lights and the full moon shining through a skylight…and every bit of fractured sleep I could get.

Before the hospitalization I had made appointments to interview companies that provide in-home caregivers and to visit an assisted living group home. We managed to keep those appointments and decided to contract for a caregiver at night for the month of December; that relieved our sleep deprivation and gave us a few weeks to decide on the ‘next step.’

Our experience with caregivers has been mostly positive but we quickly realized that there would be at least 3 people involved to cover the 7 days each week. So far 2 have not worked out: one that slept through most of the night and another that one parent disliked (strongly). We realized that the care givers rarely work with their peers (so no cross training or collaboration on unusual situations) and supervision was not apparent. The role of the company they work for seems to be primarily scheduling of services. And the services are expensive.

It has enables us to sleep through the night but the days have been fraught with home health appointmentss (nurse visits, physical therapy, occupational therapy, speech therapy, virtual doctor visits). There have been two medication changes – both with positive results. My sister and I have gotten very efficient at preparing thickened liquids and appropriately elevating the hospital bed to avoid aspiration of fluid in the lungs of our parent that was hospitalized. Other upheavals have piled on too: Carrollton’s replacement of a sewer line at the edge of the property, a plumbing problem that caused the only bathroom in the house with a door wide enough for a walker to get through to be unusable for about 24 hours, required fall yard maintenance, Thanksgiving celebration…and preparation for Christmas. There is always something that needs to be done that we can’t quite find time to do.

We researched assisted living options…at first thinking that they would be a back up plan but deciding that they should be the 1st choice based on our experience by early December and that the form that would probably be more suited for my parents would be a group home rather than a larger facility. We found one that had been created in a renovated house in their neighborhood for 6 people. We visited the facility and liked it. They had 1 opening at the time. Then they told us that there would be a second opening by the end of December (one of the residents being moved to a facility with a higher level of care) and that the largest room (the one that had been the master bedroom in the original house) was going to be available. We started the application process.

The initial discussion about assisted living and the specific place we were looking at seriously went as expected. One agreed to keep an open mind…the other had a visceral reaction and didn’t want to consider any other option than staying in the house they have lived in for 33 years. We scheduled a visit to the assisted living home…hoping that we could encourage both parents to be in information gathering mode and ask a lot of questions.

The day of the tour arrived…one parent had already decided that assisted living was the way to go, the other was still thinking it was not. Neither asked questions on the tour but looked around eagerly. One was completely exhausted by the outing but confirmed their idea that moving was best. The other became convinced (and upset) that they were going to be losing the house they called home for 33 years and moving to the assisted living place.

We are proceeding with the process toward assisted living. There are many ways that it could fall apart…but as I write this post we are on track…planning to make the move in January.

Stay tuned for our continuing journey ramping up elder care….

Previous posts: November 2023, November 2023 update